Scleroderma Framed
Not the disease at the center, but the person — the person with scleroderma. We are the Scleroderma Framed foundation, and with a team of 20 volunteers, we shape the foundation. We dream of a future where it is no longer necessary to explain what scleroderma is and what it means. Support us. You can donate via the donate button at the bottom right of the page.
Exhibition
The traveling exhibition "Scleroderma in Focus" has been a core activity of the Scleroderma Framed foundation since 2008. This exhibition features artistic portraits of people with scleroderma, created by photographer Hans-Peter van Velthoven. The images show the person behind the disease, with the central message: "Look at people, not at a disease."
National and international
The exhibition travels nationally and internationally to hospitals, medical conferences, and symposia, often accompanied by an information booth or speakers from the foundation. All of this aims to raise awareness of scleroderma and to initiate conversations about the condition. Due to the positive reception of the exhibition, a selection of the portraits has been compiled into two photo books, making the project accessible even outside the exhibitions.
Scientific research
On the initiative of Prof. Dr. Frank van den Hoogen, scientific research was also conducted on the psychological impact of the photoshoots on the models. The majority of participants reported having developed a more positive self-image after the shoot.
Standing strong for recognition
Over the years, the foundation has presented its exhibition in various hospitals, at the Ministry of Health, Welfare and Sport, and at the European Union in Brussels. The initiative has also received attention from national and international media. The combination of art, awareness, and scientifically supported impact makes the exhibition a powerful tool in the fight for recognition of this rare and serious condition.
Photobooks
The Scleroderma Framed foundation published two photo books to raise awareness of scleroderma. They feature portraits and quotes from people with this rare disease, with photography by Hans-Peter van Velthoven. The books highlight the strength of patients and increase awareness of scleroderma, including within healthcare. By purchasing the books, you support the foundation and its activities.
