Scleroderma Framed
We are the Scleroderma Framed Foundation and, with a team of 20 volunteers, we are strongly committed to give scleroderma "a face". Through our portrait photographs we want to show the person behind the condition. In this way, we can initiate a conversation and increase interest and engagement.
We dream of a future where it will no longer be necessary to explain what scleroderma is and what it means. Do you want to support our cause too?
Please support us by clicking the donate button at the bottom right of the page.
We dream of a future where it will no longer be necessary to explain what scleroderma is and what it means. Do you want to support our cause too?
Please support us by clicking the donate button at the bottom right of the page.
The touring exhibition
The touring exhibition "Scleroderma in Focus" has been the core activity of the Scleroderma Framed Foundation since 2008. The exhibition features artistic portraits of people with scleroderma, taken by photographer Hans-Peter van Velthoven. The images reveal the person behind the condition, communicating the central message "See the person, not the disease".
National and international
The exhibition tours nationally and internationally, visiting hospitals, medical conferences and symposia, often accompanied by an information stand or speakers from our foundation. The aim of all this is to raise awareness of scleroderma and to initiate a discussion about the condition.
In addition, many portraits have been compiled and arranged in two photo books - a conveniently sized exhibition. In this way, the photographs can also be displayed apart from the exhibition events themselves.
In addition, many portraits have been compiled and arranged in two photo books - a conveniently sized exhibition. In this way, the photographs can also be displayed apart from the exhibition events themselves.
Scientific research
On the initiative of Prof. Dr Frank van den Hoogen, an emeritus professor, a research study has been conducted into the psychological effects of the photo shoots on the models. The majority of participants reported having a more positive self-image after the photo shoot.
Positive Attention
Over the years, our exhibitions have been shown at various local hospitals, the Dutch Ministry of Health, Welfare and Sport, global conferences and at a European Union venue in Brussels. This has generated both national and international (media) attention for our Foundation.
In the positive, artistic way in which we raise awareness of this condition, we hope to contribute to earlier diagnosis of this rare, serious disorder in people affected by it.
In the positive, artistic way in which we raise awareness of this condition, we hope to contribute to earlier diagnosis of this rare, serious disorder in people affected by it.
Photo books
The Scleroderma Framed Foundation has published two photo books to raise awareness of scleroderma. The books feature portraits and quotes from those living with the condition. Hans-Peter van de Velthoven, the foundation's photographer, captures in his portraits the strength of these individuals, thereby giving scleroderma a face.
By purchasing these books, you are supporting our activities.
By purchasing these books, you are supporting our activities.
